Another week gone (and it’s the end of March already!!)

Busy week this week, what with the 2nd Direct Payment Support Service Advisory Group on Monday. The new Direct Payment Service starts tomorrow, 1st April. On a Tuesday I attended the A Co Production Resources Launch Event with Making it Real Board worked with. Hayley Burwood (pictured) Chair of Making it Real, gave a speech and a poem.

On Wednesday I gave a presentation to some students at the Clare School in Norwich on issues facing disabled people in Norwich in my capacity as Co Chair of Norwich Access Group.

Busy couple of weeks

I’ve had a couple of busy weeks hence not updating.

Run a workshop on doing our family history with Norwich Independent Living Group, meeting with Making it Real Board which James Bullion, head of Norfolk Adult Social Care attended.

I also resumed my trusteeship of Equal Lives as a co opted member.

Also I’ve finally completed a mini film of my Boma adventure from last year which promoted Norfolk Disability Pride.

See it here

Norfolk Makers Festival

I attended the Norfolk Makers Festival at the Forum on Friday and Sunday. I and 3 other Scoliosis Association UK members were posing for people to sketch us. The aim was to raise awareness of Scoliosis. It’s slowly getting out there as my PA Vicki was speaking to a few school children who happen to mention they learnt about King Richard and he having the condition.

Although those children had heard of scoliosis but it is still not being screened in schools. If they were, they may not have problems later in life.

The Norfolk Makers Festival continues until the 24th February at the Forum in Norwich. There are many activities going on including drawing, embroidery, pottery and much more. Visit It’s well worth a visit

Date for your diaries and Live comedy

The organising committee of Norfolk Disability Pride took place on Monday 4th. Adding to my list of chair positions I’ll be chairing future meetings. The date of this year’s event is Sunday 29th September, so put it your diaries. We are building on the success of last year’s event.

On Wednesday The Lost Voice Guy was at the Norwich Playhouse. I went with friends to see him. Well worth going. A little cock up on my part. I arrived and my the manager checked my ticket and said, oh that’s for last night! Oh shit! Second time since living in Norfolk I’ve done that. But they were very accommodating.

I attended the inaugural meeting of the Direct Payment Support Services advisory group at Norfolk County Council. This is to monitor the Payroll, Employment services that are being taken back in house from 1st April.

I’m being open minded about this.

World Cancer Day and new domain

Tomorrow, Monday 4th February is World Cancer Day. Give your support by wearing a unity band. You can get these at either WHSmiths or Peacocks. You can still or from Cancer Research UK at

My only other thing this week is a meeting at Equal Lives.

An update on my Boma Challenge this year, I have a dedicated website address where you can find out all about my challenge. Go to

Another not so busy Week

On Tuesday I went into the city to film an interview with Nick and Jayne using my ipad. This was for my little film on the Boma Challenge that I did last year.

On Wednesday, I spent nearly most of the day at County Hall. Firstly taking part in a workshop on transitioning from child to adult for those receiving support from Social Care.

After this a meeting to work out the format for a new user group.

And to end the day, a lovely massage delivered by Paula at Tranquil Treatments.

Do you have Scoliosis? I’ll be at the Forum in Norwich for the Norfolk Makers Festival where I’ll be sitting for sketchers I’ll be there on the 15th and 17th February 10am to 4pm. This is hopefully to raise awareness and we will have a collection bucket.

Come and say hi.

A belated new year

Happy belated new year.

It’s not worth me making New Years resolutions as I don’t seem to keep them. I remember last year I said I’d do a blog on a weekly basis. It didn’t last long did it?!

Anyway this week has been interesting.

I met up with the Disnet group, our annual get together to reminisce of our trips we done together. This was a project where we researched travel for disabled people and their Carers. It was a 3 year funded project where we teamed up with groups in France, Greece and Estonia.

Sadly Mike Hough who led the project passed away last year.

On Wednesday was Making it Real meeting. A very productive meeting. We had a presentation on the new Direct Payment Support services provided by Norfolk County Council from April.

And on Friday, Living Well Workshop. As a member of Making it Real Board and a service user of Adult Social care (ASC), I was invited to a workshop given to all staff at ASC on Living Well initiative. This was the launch of a new way ASC will be working in the future to promote independence. It will be phased in from February. I guess it remains to be seen how this will pan out but let’s give it a chance.

Same with the Direct Payments. I was dismayed that Equal Lives will no longer be providing Payroll or Employment Support services from April. But let’s give the new Direct Payment support services a chance and see if they can provide the same quality service as Equal Lives.

Looking to the future, later this year, planning is underway for my 10th anniversary Coast to Coast ride from Bowness on Solway to South shields. You can read more about it here

If you know of a company/business that would be interested in supporting me please let me know. You can email me at

Thank you.

Until the next time……..